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Special Needs

Pathways to Potential Part 5

Applying the Hands Full Parenting approach to your special child

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QUESTION:

How can I effectively relate to and understand my high-functioning daughter with special needs as she approaches adolescence?

ANSWER:

First, let’s look at what happens during adolescence in general. This stage brings major hormonal shifts that affect every teen. There isn’t a clear connection between developmental delays and how — or when — those changes unfold.

The strength of these changes varies from child to child, depending mostly on their individual hormones. Still, a child’s diagnosis and level of functioning shape how these shifts are expressed, especially in communication and relationships.

So, what, exactly, is adolescence?

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The Nature of Adolescence

Adolescence is the transition from childhood to adulthood, marked by physical, emotional, and cognitive changes.

The most phenomenal description I’ve found in the literature is from Judith Mishne’s book Clinical Work with Adolescents. She describes how adolescents may swing between extremes in a way that “would be deemed highly abnormal at any other time of life.” For example:  

“to fight his impulses and to accept them; to ward them off successfully and to be overrun by them; to love his parents and to hate them; to revolt against them and to be dependent on them; to be deeply ashamed to acknowledge his mother before others and, unexpectedly, to desire heart-to-heart talks with her; to be more idealistic, artistic and generous, and unselfish than he will ever be again, but also the opposite: self-centered, egotistic, calculating.”

Understanding this normal turbulence is the first step in learning how to parent any teen – including one with special needs.

The Brain Under Construction

Why is adolescence so full of intense emotions, mood swings, and impulsivity?

I describe this stage of development as the “hard hat area.” Picture a construction site.  

Before construction begins, the area is calm and quiet. Then demolition crews dismantle and remove all familiar structures – causing chaos. A passerby might even assume the construction to be destructive.

Months later, it becomes clear that the destruction and havoc were essential to the creation of a larger, more sophisticated building.

That construction project is your child’s brain.  

Prior to adolescence, children seem to have absorbed the principles they were taught, and their behavior is predictable and familiar.  

At the onset of adolescence, all this begins to change. Hormonal changes trigger the brain’s “demolition and reconstruction” process, dismantling old pathways to make room for new ones.  

It can be painful for parents to feel that the “building” they invested in — instilling their child with values and skills — has been torn down. Remember, what you’re seeing now is simply the behavioral manifestation of neurological reconstruction, and when it’s complete, a polished and refined version of your child will emerge.

The Changes of Adolescence

In adolescents with developmental delays or disabilities, hormonal changes are often similar to those in typical teens, so they experience many of the same shifts.

1. Neurological Changes: As the brain develops, adolescents often experience irregular sleep patterns, closely tied to rapid physical growth. Growth hormone is released during REM (rapid eye movement) sleep, so the adolescent brain signals tiredness more often to trigger frequent REM cycles – giving the body a chance to maximize growth.

Your teen’s increased need for sleep is a natural part of healthy development, not laziness.

It is crucial to monitor your teenager’s physical health and development while these changes are taking place. Regular checkups at the pediatrician should include a full physical exam, blood work, blood pressure, height, weight, and screening for eating disorders and curvature of the spine.

 2. Emotional Changes: In adults, the logical center – the prefrontal cortex – will override the impulsive directives given by the emotional center – the amygdala.  

In adolescents, the logic-driven prefrontal cortex is undeveloped, leaving the amygdala to respond to events and the environment using emotion and instinct, lacking logic and foresight. You’ll notice that your adolescent is more sensitive, emotionally volatile, and impulsive because they lack the prefrontal cortex’s logical interventions.  

Additionally, the amygdala’s job is to prepare the body to react to stress, so adolescents are easily overwhelmed because the amygdala is still underdeveloped.  

 3. Hormonal Changes: Adolescence brings a surge of hormones released at much higher levels than before. This flood of new hormones — mixing with the ones already there — explains why your teen may be moody, irritable, or extra sensitive at times. Both typically developing teens and those with disabilities may cry more often, struggle to regulate their emotions, and find it difficult to express what they feel.

4. Relational Changes: One of the most central aspects of childhood is dependence on parents. As they begin to move toward the independence of adulthood, adolescents instinctively turn away – often sharply and painfully – from their parents. Even if a teen with special needs may not ultimately reach the same level of independence as their peers, they still experience this developmental push. They may express it with words like, “Leave me alone,” “I don’t need you anymore,” or “Don’t tell me what to do.” For parents, those words can sting, but they’re a sign of something healthy and universal: the child’s growing need to move from dependence toward autonomy.

5. Social and Emotional Separation Of Genders. During adolescence, the structural differences between male and female brains experience a growth surge. This leads to noticeable social and emotional differences between boys and girls of the same age.  

During the earliest stage of adolescence, girls mature faster than boys in cognitive areas. They may become highly verbal during negative moments and speak in an escalated tone of voice. Your daughter with special needs may also become very conscious of her appearance.

Boys, on the other hand, continue to develop motor skills, and may express themselves physically, especially during episodes of sibling rivalry.

Recognizing these gender-based patterns can help you respond with empathy and offer the  guidance each one needs.

Tools for Teens

As tough as the teenage years can get, don’t despair. Continue to use the strategies we’ve discussed previously, such as the INB (Ignore Negative Behaviors) strategy discussed in part 4. When a behavior can’t be ignored, use SWC (Separate Without Comment) – only until your child is too big or strong for physical intervention to be safe.  

Using Missions to Transmit Values

Another strategy from the Hands Full Parenting approach that’s incredibly helpful during the teenage years is State Your Mission. Missions are a practical way to convey your values to a teenager who’s navigating the tension between his desire to separate and become independent of you and his need (albeit reluctant) to learn from you. 

Because missions avoid using direct commands, teens can absorb the value being conveyed with less resistance. Missions reframe a command (“Pick up the towel”) into a situational fact (“Towels belong on the rack”). 

Ideally, missions 

  • Contain no more than ten words 
  • Don’t include the words “you” or “your” 
  • Are stated calmly 
  • Do not come with an expectation of immediate compliance 

After stating the mission, if your teen completes the task, thank him pleasantly. If not, you may repeat the mission calmly after 15 minutes, using the same language you used previously. You can also complete the task at any time on your own – ideally, not in front of your teen. 

Always keep the goal in mind: not to get the task done, but to build your child into a responsible adult who has integrity and strong values, and will do the right thing without your help.

This Too Shall Pass

Finally, remember the teenage stage is just that – a phase. 

No matter how intense these changes feel in the moment, they’re part of a specific developmental stage. And in time, they will pass. 

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Auditory Sensitivity

My child is sensitive to loud noises
(e.g., sirens, vacuum cleaner).

My child seeks out specific sounds or types of music and appears calmer when listening to them.

Tactile Sensitivity

My child is irritated by certain fabrics or tags in clothing.

My child seems indifferent to sensations that are usually painful or to extreme temperatures.

Visual Sensitivity

My child is sensitive to bright or flashing lights.

My child tends to avoid eye contact.

Taste/Smell Sensitivity

My child constantly prefers bland foods and rejects foods with strong flavors or spices.

My child seeks out strong or unusual smells, such as sniffing food or objects.

Proprioceptive Sensitivity

My child prefers tight hugs or being wrapped in a blanket.

My child is unaware of body position in space (e.g., often bumps into things).

Social Sensitivity

My child becomes anxious or distressed in crowded spaces.

My child is hesitant or resistant to climbing or balancing activities (e.g., jungle gyms, see-saws).

Movement Sensitivity

My child dislikes fast or spinning movements

Vestibular Sensitivity

My child becomes anxious or distressed in crowded spaces.

My child is hesitant or resistant to climbing or balancing activities (e.g., jungle gyms, see-saws).

Please answer all questions before submitting.

Your Child’s Score is

  • 0-15

    Low Sensory Sensitivity

  • 16-30

    Moderate Sensory Sensitivity

  • 31-45

    High Sensory Sensitivity

  • 46-60

    Very High Sensory Sensitivity

0-15: Low Sensory Sensitivity

  • Interpretation: Your child exhibits low levels of sensory sensitivity, usually falling within the typical developmental range.
  • Recommendation: Generally not  a cause for concern. If you have specific worries or notice a sudden change in behavior, consult a healthcare professional for a comprehensive evaluation.
  • 0-15

    Low Sensory Sensitivity

  • 16-30

    Moderate Sensory Sensitivity

  • 31-45

    High Sensory Sensitivity

  • 46-60

    Very High Sensory Sensitivity

16-30: Moderate Sensory Sensitivity

  • Interpretation: Your child displays moderate sensory sensitivity, which may warrant intervention.
  • Recommendation: Consider sensory-friendly activities, sensory sensitive toys, or sensory sensitive clothing like noise-canceling headphones and weighted blankets to improve comfort. If symptoms persist, consult health care professionals.
  • 0-15

    Low Sensory Sensitivity

  • 16-30

    Moderate Sensory Sensitivity

  • 31-45

    High Sensory Sensitivity

  • 46-60

    Very High Sensory Sensitivity

31-45: High Sensory Sensitivity

  • Interpretation: Your child has higher than average sensory sensitivity that may interfere with daily functioning.
  • Recommendation: Seek a detailed evaluation by health care professionals for sensory integration therapy options and potential environmental modifications.
  • 0-15

    Low Sensory Sensitivity

  • 16-30

    Moderate Sensory Sensitivity

  • 31-45

    High Sensory Sensitivity

  • 46-60

    Very High Sensory Sensitivity

46-60: Very High Sensory Sensitivity

  • Interpretation: Your child demonstrates high levels of sensory sensitivity that could significantly interfere with daily life.
  • Recommendation: If your child displays this level of sensory sensitivity, it’s highly recommended that you consult with a health care professional for a multi-disciplinary assessment. You will probably be directed towards early intervention programs and specialized support.

Pathways to Potential Part 5

Recognizing CVI: Ten Characteristics

Understanding CVI

Sight Unseen

Inclusion Without Overwhelm

To Tell or Not to Tell

Rose Colored Glasses

Summer’s Secret Skills

Recognizing Early Signs of Autism

A Hug from Above

Smart, Simple Camp Prep for Kids With Special Needs

Pathways to Potential Part 4

The Colors of the Spectrum

The Essential Guide to Outings with Kids with Special Needs

Pathways to Potential Part 3

How Do I Get OPWDD Approval?

Indoor Winter Sensory Adventures

Defining IDD Levels and Severity

Life Skills for Individuals with Intellectual Disabilities

The Sensory-Smart Gift Guide

Spina Bifida: Early Intervention

Nothing to Hide

Pathways to Potential Part 2

Yom Tov Transitions Made Easy

NYC’s Top Accessible Adventures

The Yom Tov Parenting Survival Guide

Understanding OPWDD Eligibility: What You Need to Know

How Direct Support Professionals Enhance Quality of Life

What Is Com Hab and How Does It Provide Individualized Support?

6 Benefits of Respite Care for Families of Kids with Special Needs

Encouragement for the First Day of School

What is Spina Bifida? An Overview

My Life in Holland

Fostering Independence in Children With IDD

Understanding IDD

What is Epilepsy?

Defining Signs of Dyslexia

Pathways to Potential Part 1

Understanding Down Syndrome

Early Intervention for Down Syndrome

Our Roller Coaster Ride

Understanding Cerebral Palsy

Understanding Autism

Autism Support

Sensory Processing Sensitivity Test

Decoding Diagnostic Tests

The Ultimate Child Development Checklist

Empowering Emotional Intelligence

Managing Panic Attacks

Understanding Social Anxiety Disorder

Confronting Childhood Trauma

How to Support a Family Member with Anxiety

Understanding Separation Anxiety

Understanding Post Traumatic Stress Disorder (PTSD)

Mental Health Disorder Prevention

Combating Depression in the Elderly

Understanding Depression

Understanding Anxiety

Adult ADHD Action Plan

Helping Kids Sleep Better: Sleep Strategies for Anxiety

Recognizing CVI: Ten Characteristics

Understanding CVI

Sight Unseen

To Tell or Not to Tell

Rose Colored Glasses

Recognizing Early Signs of Autism

Spina Bifida: Early Intervention

A Parent's Guide to Cooking for Kids With Food Allergies

Early Intervention for Down Syndrome

Understanding Speech and Language Development

Helping Kids Sleep Better: Sleep Strategies for Anxiety

Sensory Processing Sensitivity Test

Strategies for Feeding a Picky Eater

Simple Sensory Activities to Try with Your Child

Decoding Diagnostic Tests

The Ultimate Child Development Checklist

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