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Necesidades especiales

Pathways to Potential Part 5

Applying the Hands Full Parenting approach to your special child

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QUESTION:

How can I effectively relate to and understand my high-functioning daughter with special needs as she approaches adolescence?

ANSWER:

First, let’s look at what happens during adolescence in general. This stage brings major hormonal shifts that affect every teen. There isn’t a clear connection between developmental delays and how — or when — those changes unfold.

The strength of these changes varies from child to child, depending mostly on their individual hormones. Still, a child’s diagnosis and level of functioning shape how these shifts are expressed, especially in communication and relationships.

So, what, exactly, is adolescence?

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The Nature of Adolescence

Adolescence is the transition from childhood to adulthood, marked by physical, emotional, and cognitive changes.

The most phenomenal description I’ve found in the literature is from Judith Mishne’s book Clinical Work with Adolescents. She describes how adolescents may swing between extremes in a way that “would be deemed highly abnormal at any other time of life.” For example:  

“to fight his impulses and to accept them; to ward them off successfully and to be overrun by them; to love his parents and to hate them; to revolt against them and to be dependent on them; to be deeply ashamed to acknowledge his mother before others and, unexpectedly, to desire heart-to-heart talks with her; to be more idealistic, artistic and generous, and unselfish than he will ever be again, but also the opposite: self-centered, egotistic, calculating.”

Understanding this normal turbulence is the first step in learning how to parent any teen – including one with special needs.

The Brain Under Construction

Why is adolescence so full of intense emotions, mood swings, and impulsivity?

I describe this stage of development as the “hard hat area.” Picture a construction site.  

Before construction begins, the area is calm and quiet. Then demolition crews dismantle and remove all familiar structures – causing chaos. A passerby might even assume the construction to be destructive.

Months later, it becomes clear that the destruction and havoc were essential to the creation of a larger, more sophisticated building.

That construction project is your child’s brain.  

Prior to adolescence, children seem to have absorbed the principles they were taught, and their behavior is predictable and familiar.  

At the onset of adolescence, all this begins to change. Hormonal changes trigger the brain’s “demolition and reconstruction” process, dismantling old pathways to make room for new ones.  

It can be painful for parents to feel that the “building” they invested in — instilling their child with values and skills — has been torn down. Remember, what you’re seeing now is simply the behavioral manifestation of neurological reconstruction, and when it’s complete, a polished and refined version of your child will emerge.

The Changes of Adolescence

In adolescents with developmental delays or disabilities, hormonal changes are often similar to those in typical teens, so they experience many of the same shifts.

1. Neurological Changes: As the brain develops, adolescents often experience irregular sleep patterns, closely tied to rapid physical growth. Growth hormone is released during REM (rapid eye movement) sleep, so the adolescent brain signals tiredness more often to trigger frequent REM cycles – giving the body a chance to maximize growth.

Your teen’s increased need for sleep is a natural part of healthy development, not laziness.

It is crucial to monitor your teenager’s physical health and development while these changes are taking place. Regular checkups at the pediatrician should include a full physical exam, blood work, blood pressure, height, weight, and screening for eating disorders and curvature of the spine.

 2. Emotional Changes: In adults, the logical center – the prefrontal cortex – will override the impulsive directives given by the emotional center – the amygdala.  

In adolescents, the logic-driven prefrontal cortex is undeveloped, leaving the amygdala to respond to events and the environment using emotion and instinct, lacking logic and foresight. You’ll notice that your adolescent is more sensitive, emotionally volatile, and impulsive because they lack the prefrontal cortex’s logical interventions.  

Additionally, the amygdala’s job is to prepare the body to react to stress, so adolescents are easily overwhelmed because the amygdala is still underdeveloped.  

 3. Hormonal Changes: Adolescence brings a surge of hormones released at much higher levels than before. This flood of new hormones — mixing with the ones already there — explains why your teen may be moody, irritable, or extra sensitive at times. Both typically developing teens and those with disabilities may cry more often, struggle to regulate their emotions, and find it difficult to express what they feel.

4. Relational Changes: One of the most central aspects of childhood is dependence on parents. As they begin to move toward the independence of adulthood, adolescents instinctively turn away – often sharply and painfully – from their parents. Even if a teen with special needs may not ultimately reach the same level of independence as their peers, they still experience this developmental push. They may express it with words like, “Leave me alone,” “I don’t need you anymore,” or “Don’t tell me what to do.” For parents, those words can sting, but they’re a sign of something healthy and universal: the child’s growing need to move from dependence toward autonomy.

5. Social and Emotional Separation Of Genders. During adolescence, the structural differences between male and female brains experience a growth surge. This leads to noticeable social and emotional differences between boys and girls of the same age.  

During the earliest stage of adolescence, girls mature faster than boys in cognitive areas. They may become highly verbal during negative moments and speak in an escalated tone of voice. Your daughter with special needs may also become very conscious of her appearance.

Boys, on the other hand, continue to develop motor skills, and may express themselves physically, especially during episodes of sibling rivalry.

Recognizing these gender-based patterns can help you respond with empathy and offer the  guidance each one needs.

Tools for Teens

As tough as the teenage years can get, don’t despair. Continue to use the strategies we’ve discussed previously, such as the INB (Ignore Negative Behaviors) strategy discussed in part 4. When a behavior can’t be ignored, use SWC (Separate Without Comment) – only until your child is too big or strong for physical intervention to be safe.  

Using Missions to Transmit Values

Another strategy from the Hands Full Parenting approach that’s incredibly helpful during the teenage years is State Your Mission. Missions are a practical way to convey your values to a teenager who’s navigating the tension between his desire to separate and become independent of you and his need (albeit reluctant) to learn from you. 

Because missions avoid using direct commands, teens can absorb the value being conveyed with less resistance. Missions reframe a command (“Pick up the towel”) into a situational fact (“Towels belong on the rack”). 

Ideally, missions 

  • Contain no more than ten words 
  • Don’t include the words “you” or “your” 
  • Are stated calmly 
  • Do not come with an expectation of immediate compliance 

After stating the mission, if your teen completes the task, thank him pleasantly. If not, you may repeat the mission calmly after 15 minutes, using the same language you used previously. You can also complete the task at any time on your own – ideally, not in front of your teen. 

Always keep the goal in mind: not to get the task done, but to build your child into a responsible adult who has integrity and strong values, and will do the right thing without your help.

This Too Shall Pass

Finally, remember the teenage stage is just that – a phase. 

No matter how intense these changes feel in the moment, they’re part of a specific developmental stage. And in time, they will pass. 

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Sensibilidad auditiva

Mi hijo es sensible a los ruidos fuertes
(p. ej., sirenas, aspiradora).

Mi hijo busca sonidos o tipos de música específicos y parece más tranquilo cuando los escucha.

Sensibilidad táctil

A mi hijo le irritan ciertas telas o etiquetas en la ropa.

Mi hijo parece indiferente a las sensaciones que suelen ser dolorosas o a las temperaturas extremas.

Sensibilidad visual

Mi hijo es sensible a las luces brillantes o parpadeantes.

Mi hijo tiende a evitar el contacto visual.

Sensibilidad al gusto y al olfato

Mi hijo prefiere constantemente los alimentos blandos y rechaza los alimentos con sabores o especias fuertes.

Mi hijo busca olores fuertes o inusuales, como oler comida u objetos.

Sensibilidad propioceptiva

Mi hijo prefiere los abrazos fuertes o que lo envuelvan en una manta.

Mi hijo no es consciente de la posición del cuerpo en el espacio (por ejemplo, a menudo choca con cosas).

Sensibilidad social

Mi hijo se pone ansioso o angustiado en espacios abarrotados.

Mi hijo duda o se resiste a las actividades de escalada o equilibrio (por ejemplo, gimnasios en la jungla, balancines).

Sensibilidad al movimiento

A mi hijo no le gustan los movimientos rápidos o giratorios

Sensibilidad vestibular

Mi hijo se pone ansioso o angustiado en espacios abarrotados.

Mi hijo duda o se resiste a las actividades de escalada o equilibrio (por ejemplo, gimnasios en la jungla, balancines).

Please answer all questions before submitting.

Your Child’s Score is

  • 0-15

    Baja sensibilidad sensorial

  • 16-30

    Sensibilidad sensorial moderada

  • 31-45

    Alta sensibilidad sensorial

  • 46-60

    Sensibilidad sensorial muy alta

0-15: Baja sensibilidad sensorial

  • Interpretación: Su hijo presenta niveles bajos de sensibilidad sensorial, que por lo general se encuentran dentro del rango de desarrollo típico.
  • Recomendación: Por lo general, no es motivo de preocupación. Si tienes preocupaciones específicas o notas un cambio repentino de comportamiento, consulta a un profesional de la salud para que te haga una evaluación exhaustiva.
  • 0-15

    Baja sensibilidad sensorial

  • 16-30

    Sensibilidad sensorial moderada

  • 31-45

    Alta sensibilidad sensorial

  • 46-60

    Sensibilidad sensorial muy alta

16-30: Sensibilidad sensorial moderada

  • Interpretación: Su hijo muestra una sensibilidad sensorial moderada, lo que puede justificar la intervención.
  • Recomendación: Considera la posibilidad de realizar actividades que favorezcan los sentidos, los juguetes o la ropa sensorialmente sensibles, como auriculares con cancelación de ruido y mantas pesadas, para mejorar la comodidad. Si los síntomas persisten, consulta a un profesional de la salud.
  • 0-15

    Baja sensibilidad sensorial

  • 16-30

    Sensibilidad sensorial moderada

  • 31-45

    Alta sensibilidad sensorial

  • 46-60

    Sensibilidad sensorial muy alta

31-45: Alta sensibilidad sensorial

  • Interpretación: Su hijo tiene una sensibilidad sensorial superior a la media que puede interferir con su funcionamiento diario.
  • Recomendación: Solicite una evaluación detallada por parte de profesionales de la salud para conocer las opciones de terapia de integración sensorial y las posibles modificaciones ambientales.
  • 0-15

    Baja sensibilidad sensorial

  • 16-30

    Sensibilidad sensorial moderada

  • 31-45

    Alta sensibilidad sensorial

  • 46-60

    Sensibilidad sensorial muy alta

46-60: Sensibilidad sensorial muy alta

  • Interpretación: Su hijo demuestra niveles altos de sensibilidad sensorial que podrían interferir significativamente con la vida diaria.
  • Recomendación: Si su hijo muestra este nivel de sensibilidad sensorial, es muy recomendable que consulte con un profesional de la salud para una evaluación multidisciplinaria. Es probable que te dirijan hacia programas de intervención temprana y apoyo especializado.

Pathways to Potential Part 5

Recognizing CVI: Ten Characteristics

Understanding CVI

Sight Unseen

Inclusión sin agobio

To Tell or Not to Tell

Gafas de color rosa

Las habilidades secretas del verano

Reconocer los signos tempranos del autismo

Un abrazo desde arriba

Preparación de campamento inteligente y sencilla para niños con necesidades especiales

Caminos hacia el potencial, parte 4

Los colores del espectro

La guía esencial para salir con niños con necesidades especiales

Caminos hacia el potencial, parte 3

¿Cómo obtengo la aprobación de la OPWDD?

Aventuras sensoriales de invierno en interiores

Definición de los niveles y la gravedad de los IDD

Habilidades para la vida para personas con discapacidades intelectuales

La guía de regalos de Sensory-Smart

Espina bífida: intervención temprana

Nada que esconder

Caminos hacia el potencial, parte 2

Transiciones de Yom Tov simplificadas

Las mejores aventuras accesibles de Nueva York

La guía de supervivencia para padres de Yom Tov

Comprensión de la elegibilidad para la OPWDD: lo que necesita saber

Cómo los profesionales de soporte directo mejoran la calidad de vida

¿Qué es Com Hab y cómo brinda apoyo individualizado?

6 beneficios de los cuidados de relevo para las familias de niños con necesidades especiales

Estímulo para el primer día de clases

¿Qué es la espina bífida? Una visión general

Mi vida en Holanda

Fomentar la independencia en los niños con problemas de carencia de yodo

Entender la IDD

¿Qué es la epilepsia?

Definición de los signos de dislexia

Caminos hacia el potencial, parte 1

Comprender el síndrome de Down

Intervención temprana para el síndrome de Down

Nuestro paseo en montaña rusa

Entendiendo la parálisis cerebral

Entender el autismo

Apoyo para el autismo

Prueba de sensibilidad al procesamiento sensorial

Decodificación de pruebas de diagnóstico

La lista de verificación del desarrollo infantil

Potenciando la inteligencia emocional

Cómo manejar los ataques de pánico

Comprender el trastorno de ansiedad social

Enfrentando el trauma infantil

Cómo apoyar a un miembro de la familia con ansiedad

Comprender la ansiedad por separación |

Comprender el trastorno de estrés postraumático (TEPT)

Prevención de trastornos mentales

Combatir la depresión en los ancianos

Entender la depresión

Entender la ansiedad

Plan de acción para el TDAH en adultos

Estrategias de sueño para el niño ansioso

Recognizing CVI: Ten Characteristics

Understanding CVI

Sight Unseen

To Tell or Not to Tell

Gafas de color rosa

Reconocer los signos tempranos del autismo

Espina bífida: intervención temprana

Guía para padres sobre cómo cocinar para niños con alergias alimentarias

Intervención temprana para el síndrome de Down

Comprender el desarrollo del habla y el lenguaje

Estrategias de sueño para el niño ansioso

Prueba de sensibilidad al procesamiento sensorial

Alimentar a su quisquilloso con la comida

Actividades sensoriales sencillas

Decodificación de pruebas de diagnóstico

La lista de verificación del desarrollo infantil

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